Showing posts with label HD. Show all posts
Showing posts with label HD. Show all posts

Thursday, April 2, 2009

The start of soo much more.

So yesterday I thought about how to fix the problem. How do I go about getting better? A suggested that I see my dr. and maybe get medication. A different A told me that I would spend weeks trying to get the right thing and I would be void of all feeling. So I instead decided that helping other people makes me feel better soooo. Hmmmm... how can I help others?

Well my Dad's been pushing me to find a support group that deals with Hirschsprung's. I CAN"T FIND ONE! I search and search and I find maybe 3 and of those 3 none of them have more comments than 6. I need more. So he suggested making my own! I was like no. Thats not going to work. Than I started to think.

So now I have launched www.myhirschsprungsbaby.blogspot.com. Its a look inside Deacon and his illness. Im hoping that it will become a place for "experienced" parents to help new HD moms to figure out whats best for their child. Ive messaged 3 other blog parents I've found in hopes that they will help me out with their expertise. I only know what has and hasn't worked for Deacon a long segment baby. I've researched a little about short segment but Im no where near a mom who deals with it on a day to day basis. I would LOVE it if you could go there and send everybody you know there and comment so that it would turn up in google searches! Thanks guys!